The Muscular Dystrophy Association
Of Greater Baton Rouge
8126 One Calais Ave. #1-C • Baton Rouge, LA 70809
Phone: 225-761-7010 • Fax: 225-761-7011
E-mail: batonrougedistrict@mdausa.org
VISIT US ON THE WEB @ WWW.MDAUSA.ORG
MDA of Greater Baton Rouge assists over 400 local families. These families are from the nine parish area including Tangipahoa, Iberville, Ascension, East Baton Rouge, West Baton Rouge, Livingston, Point Coupe, East Feliciana and West Feliciana.
Together We're paving the Way to a promising Future!!!
From the rumble-filled “Harley Day” at MDA summer camp to pledge rides that draw thousands of riders, MDA has been on the road to a cure with the legendary motorcycle manufacturer since 1980. Since then, the Harley-Davidson family of customers, dealers, suppliers and employees has raised more than $60 million to aid research and program services for children and adults with muscular dystrophy. The funds raised support life-saving research, comprehensive medical care for children and adults with neuromuscular disease, and MDA summer camps. Harley-Davidson customers, dealers, suppliers and employees are committed to improving their communities and helping others, and our support of MDA has enabled riders to work together for a common cause. The hard work of Harley enthusiasts helps make life brighter for people with muscular dystrophy and helps make strides in finding a cure. For more information, visit the MDA site at www.mda.org or www.mdarides.org for additional information.
Now You Can Purchase MDA Raffle Tickets On-Line!!!
Just 3000 tickets will be sold at only $20.00 each!.
Grand Prize is a 2009 Harley-Davidson® FLHT Electra Glide® Standard *
About This Motorcycle: VIVID BLACK. From the new comfort-stitched saddle to the six-speed 96-cubic-inch engine, you'll see what makes logging miles on a big Harley so addictive. NEW frame design, exhaust, wheels and tires. Equipped with key touring features, the Electra Glide Standard is a long-haul motorcycle you can grow with or build on. Standard equipment includes locking hard saddlebags, a fork-mounted touring fairing with instrumentation, auxiliary lamps, plus all the benefits of the new Touring chassis, wheels and tires. A new low-mount license bracket locates the plate below the tail lamp, with new LED illumination. The passenger pillion has been reshaped for additional passenger comfort. Plus with the addition of a passenger backrest, makes this bike very comfortable for long trips.
2nd & 3rd Prizes will also be awarded.
The drawing will take place Sat., June 20, 2009 at 2:00p.m. H-D of Baton Rouge location on Siegen Lane, and the winner need not be present. Tickets may be purchased at Harley-Davidson of Baton Rouge (225-292-9632), Hammond Harley-Davidson Shop (985-345-8381) or by calling MDA of Greater Baton Rouge at (225-761-7010).
Print event details.
MDA Summer Camp – Escort to Camp Sunshine – Sunday, May 24th, 2009
For many kids, is simply “the best week of the year.”
Some even call it “better than Christmas.” Plan to join the Baton Rouge H.O.G. group on Sunday, May 24th, 2009 for the Annual MDA Escort to Camp Sunshine, Bunkie, LA. Plan to be at the dealership by 10:00 am to help load buses and depart when the New Orleans group arrives around 11:30am. "This is a chance for us to be the majority instead of the minority."- MDA Camper.
They’re talking about MDA summer camp – a fun-filled week for children with neuromuscular diseases that takes place at over 90 different camps across the country. MDA summer camp is a week that is free of the barriers that might ordinarily get in the way of fun for a child who uses a wheelchair or has other mobility limitations.
Campers enjoy accessible activities like swimming, horseback riding, arts and crafts, sports and games, and making lifelong friendships with kids who are living with similar challenges. Parents enjoy a week of respite from what can be an intense schedule of caring for their child’s special health needs. H.O.G. chapters and enthusiasts add to the fun at dozens of camps with “Harley-Davidson Day” – another highlight that usually begins with the unmistakable thunder of a parade of bikes entering the campsite.
"Many campers treasure the chance to sit on a bike for the first time! Many even dress the part with a temporary tattoo, bandana and some leather for the day. H.O.G. members often find the day to be just as memorable for them, and make it an annual summer event." To learn how you can get involved and attend or volunteer at MDA summer camp please call the MDA Office of Baton Rouge at 225-761-7010.
2009 MDA LABOR DAY TELETHON & ANNUAL CHECK PRESENTATION
Hello Harley Friends! The MDA Labor Day Telethon is quickly approaching and for many years, the Harley-Davidson family has helped MDA by answering the phones at Telethon. Telethon will be held in the Hilton Capitol Center in downtown Baton Rouge. A total of 10 designated phones during the day on Monday, September 7th. During this time, Harley-Davidson will also make their annual check presentation for the raffle and other miscellaneous events held throughout the year. Let's put it this way, it was a record-breaking year which would not have been possible without your support. Please mark your calendar and watch NBC-33 as we show highlights from the national show and feature our local families and sponsors. Thanks again for all that you do for MDA.
Monique Simpson MDA District Director
BE SURE TO TUNE INTO WVLA CHANNEL 33 ON MONDAY, SEPTEMBER 7, 2009 AS HARLEY-DAVIDSON OF BATON ROUGE,THE HAMMOND HARLEY-DAVIDSON SHOP, SPONSORS & THE HARLEY OWNERS GROUP (Baton Rouge & Hammond) ANSWERS PHONES AND MAKES OUR ANNUAL CHECK PRESENTATION.
What Your Pledge Dollars Buy
$30
Flu Shot
$82
One minute of research
$100
One support group session
$150
One physical, occupational or respiratory therapy consultation
$200
Professional fees related to initial diagnostic work-up at an MDA clinic
$500
Assists one person for one year with the repair of a wheelchair or leg braces
$800
Sends one child to MDA summer camp
$2,000
Assists one person with the purchase of a wheelchair, leg braces or communication device
78.4% of every dollar MDA spends goes directly to research, health care services and education, the rest to fund raising and administration.
MDA spends $82 a minute in its worldwide Research program, supporting some 350 teams.
MDA spends$176 a minute in its Health Care Services program,including clinics and summer camp.
MDA spends $46 a minute in its Professional and Public Health Education program, including publications, Web sites and research conferences.
MDA maintains some 225 hospital-affiliated clinics, including 37 MDA/ALS centers.
MDA clinics are staffed by teams of top health professionals skilled in the diagnosis and medical management of neuromuscular diseases. Services provided at MDA clinics may include occupational therapy, selected diagnostic tests, genetic counseling, respiratory therapy and more.
MDA is sponsoring some 90 weeklong summer camp sessions in 2009, serving more than 4,000 young people across the country and in Puerto Rico. More than 5,200 volunteers give a week of their time to serve as MDA camp counselors.
2008 Telethon raised a record $65 million in contributions and pledges.
Telethon 2008 was viewed by more than 40 million people, by some 180 television stations, in the United States, Puerto Rico and Canada, and by millions more worldwide via the Internet.
The Muscular Dystrophy Association
